Impact
Shannon's Path is committed to its namesake's values by funding rare cancer research and care in a manner consistent with Shannon's journey. Just as Shannon sought care from a wide variety of medical disciplines, Shannon's Path supports both traditional research institutions and holistic care for patients unable to afford these significant out-of-pocket expenses. Through our research and integrative care programs, the organization funds both long-term and immediate improvements in care for cancer patients.
Appendiceal Mucinous Adenocarcinoma
Quick Facts
Prevalence
Recognized as a "rare disease" by the National Organization for Rare Disorders, approximately 3,000 patients are diagnosed each year in the United States.
Diagnosis
As the 2nd most common type of appendix cancer, Appendiceal Mucinous Adenocarcinoma, is often diagnosed in patients aged between 50-55.
Treatment
Treatment generally limited to two chemo protocols and invasive cytoreductive and HIPEC surgery. Unfortunatley, this area of cancer treatment has seen little advancement over last 40 years.
Prognosis
Typically diagnosed at late stage due to the slow build-up of mucus caused by the cancer cells in a patient's abdominal lining. Diagnosis after metastisis into abdomen can lead to a more dire prognosis with the majority of patients not surviving past five years.
How we Help
Appendiceal Mucinous Adenocarcinoma receives very little funding due to its low prevalence rates and lack of awareness. However, funding research in this area is incredibly important as patients diagnosed with a rare forms of cancer such as this one have lower average survival rates than those with common cancers. In honor of Shannon's integrative approach combining both traditional and holistic treatments, our organization stays up-to-date on the latest advancements in research and promising projects to further efforts in one day finding a cure for this devasting disease.
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As a mother to two young boys, Shannon's holistic approach allowed her to continue to be present for her entire family despite the debilitating effects of both her diagnosis and treatment. Although she was able to make use of a wide range of integrative medical treatments, these approaches are typically not covered by insurance and can incur prohibitive out-of-pocket expenses. In continuing Shannon's spirit of taking care of others, Shannon's Path established the HOPE Fund for integrative therapies to help adults navigate their cancer diagnosis.